About Us

About

We were awarded A grant to undertake a project on fatigue in IBD

We have been tasked with examining the causes of fatigue, pilot a fatigue assessment tool and explore interventions to improve its management.

Inflammatory Bowel Disease (IBD) affects 240,000 people in the UK. Severe fatigue is a commonly reported symptom’; during remission 40% of people report it as their most troublesome symptom. However, awareness of this in health professionals is low and treatments for it are often lacking. Crohn’s and Colitis UK have been awarded a £481, 242 grant by the Big Lottery Fund to undertake a project on fatigue in IBD. The 4 year research project (which began in July 2010), set out to examine the causes of fatigue, pilot a fatigue assessment tool and explore interventions to improve its management in IBD. The research is being carried in conjunction with our partners at King’s College London, University College London and Addenbrookes’ NHS Trust. As part of the research we have:

  • Interviewed twenty volunteers with IBD and analysed the data that emerged from these discussions.
  • Developed the first ever fatigue assessment tool which we tested with over 500 volunteers who came forward to help with the project.
  • Interviewed healthcare professionals about their perceptions of fatigue
  • Developed an MOT checklist which can be used by patients and healthcare professionals to identify reversible causes of fatigue which can be established through blood tests or as part of routine assessments.
  • Produced two videos which highlight the patient experience of fatigue and aim to raise awareness of the fatigue rating scale and MOT checklist
  • Written papers for academic journals and given presentations to health care practitioners and patient groups to raise awareness of this much overlooked symptom of IBD.

We are also in the process of testing two interventions with patient volunteers at University College London Hospital, the results of which should be available by December 2014. By the end of the study we want to achieve the following outcomes:

  • People with IBD will be more confident in requesting assessment and treatment for fatigue.
  • Healthcare professionals in 240 IBD clinics will be able to provide greater help to people with IBD to manage their fatigue, though the development, testing and dissemination of a new IBD specific fatigue measurement scale.
  • People with IBD will benefit from better assessment and treatment of their fatigue, through the development and evaluation of new interventions

Funding

The Big Lottery Fund is the largest UK distributor of National Lottery money to good causes. Their mission is to bring real improvements to communities and lives of people most in need. The Big Lottery Fund uses money raised by The National Lottery to fund projects for health, education, environmental and charitable purposes. In 2009/10 they made 14,000 funding commitments totalling £440 million to groups across the UK, ranging from £300 to investments of more than £1 million. Crohn’s and Colitis UK was awarded a grant of £481,242 in November 2009 to undertake a research project on fatigue and IBD. For further information on the Big Lottery Fund, and its charitable grants, click here lottery_funded