Questionnaire Banner

Measure your fatigue

How much is fatigue
affecting your
life?

Find out by taking our test to assess
the severity, frequency and duration
of your fatigue.

The first ever fatigue rating scale for IBD

In-depth qualitative interviews with our study volunteers confirmed that fatigue was a big issue that had a severe impact on many areas of life.  They also confirmed a need for a way of measuring fatigue to enable people with IBD to discuss fatigue with their health care professionals and test interventions and treatment.

Fatigue scales had been used in many other conditions, to help patients and doctors measure levels of fatigue, however there was no scale that had been developed specifically for IBD.

Our fatigue scale –which can be accessed and scored below will enable people living with IBD to:

  • self-assess their fatigue and the impact is has on their lives
  • more easily raise their fatigue symptoms with healthcare professionals
  • assess whether changes in lifestyle are having any impact on fatigue levels
  • discuss their fatigue with family, friends and employers

Healthcare Professionals

Healthcare professionals can use the fatigue scales to assess measure and monitor patients’ fatigue over time.  Patients may wish to take a completed fatigue scale to their healthcare consultations.

Further Reading:  A paper on the methodology of the fatigue rating scale will shortly be published on open access at the Journal of Crohn’s and Colitis, a link will appear here when published.

If you would like any help in using the scale or would like to send your feedback please email fatigueproject@crohnsandcolitis.org.uk

 

If you would rather complete your self assessment on paper you may download and print off the pdf instead. Then check against the scoring instructions.

 

SECTION I – Fatigue Assessment Scale

This section of the questionnaire will identify fatigue, its severity, frequency and duration.

Sometimes people with inflammatory bowel disease feel fatigued. The term ‘fatigue’ is used throughout the questionnaire. Fatigue has been defined as a sense of continuing tiredness, with periods of sudden and overwhelming lack of energy or feeling of exhaustion that is not relieved following rest or sleep.

Please answer all the questions. The possible answers to the questions are:

Score from 0 – 4 with 0 = No fatigue 4 = Severe fatigue

 

1) What is your fatigue level right NOW
Please Choose

2) What was your HIGHEST fatigue level in the past two weeks
Please Choose

3) What was your LOWEST fatigue level in the past two weeks
Please Choose

4) What was your AVERAGE fatigue level in the past two weeks
Please Choose

The possible answers to this question are:

0 = None of the time  1 = Some of the time  2 = Often  3 = Most of the time  4 = All of the time

5) How much of your waking time have you felt fatigued in the past two weeks
Please Choose

RESULTS:

WHAT DOES YOUR SCORE MEAN?

0
You do not have Fatigue
1-10
You have slight to moderate Fatigue and we suggest you seek medical advice
11-20
You have severe Fatigue and we suggest you seek medical advice
IF YOU SELECTED ANSWERS BETWEEN 1 TO 4 IN ANY OF THE ABOVE QUESTIONS IN SECTION I PLEASE CONTINUE AND FILL IN SECTION II

SECTION II – IBD-Fatigue Impact on Daily Activities Scale

This section assesses the perceived impact of fatigue on your daily activities in the past two weeks.

Please answer all the questions. The possible answers to the questions are:

0 = None of the time. 1 = A little bit of the time. 2 =  Some of the time. 3 = Most of the time. 4 = All of the time.

If a particular activity does not apply to you, for example you do not drive, please select N/A.

 

1) I had to nap during the day because of fatigue
Please Choose

2) Fatigue stopped me from going out to social events
Please Choose

3) I was not able to go to work or college because of fatigue
Please Choose

4) My performance at work or education was affected by fatigue
Please Choose

5) I had problems concentrating because of fatigue
Please Choose

6) I had difficulty motivating myself because of fatigue
Please Choose

7) I could not wash and dress myself because of fatigue
Please Choose

8) I had difficulty with walking because of fatigue
Please Choose

9) I was unable to drive as much as I need to because of fatigue
Please Choose

10) I was not able to do as much physical exercise as I wanted to because of fatigue
Please Choose

11) I had difficulty continuing with my hobbies/interests because of fatigue
Please Choose

12) My emotional relationship with my partner was affected by fatigue
Please Choose

13) My sexual relationship with my partner was affected by fatigue
Please Choose

14) My relationship with my children was affected by fatigue
Please Choose

15) I was low in mood because of fatigue
Please Choose

16) I felt isolated because of fatigue
Please Choose

17) My memory was affected because of fatigue
Please Choose

18) I made mistakes because of fatigue
Please Choose

19) Fatigue made me irritable
Please Choose

20) Fatigue made me frustrated
Please Choose

21) I got words mixed up because of fatigue
Please Choose

22) Fatigue stopped me from enjoying life
Please Choose

23) Fatigue stopped me from having a fulfilling life
Please Choose

24) My self-esteem was affected by fatigue
Please Choose

25) Fatigue affected my confidence
Please Choose

26) Fatigue made me feel unhappy
Please Choose

27) I had difficulties sleeping at night because of fatigue
Please Choose

28) Fatigue affected my ability to do all my normal household activities
Please Choose

29) I had to ask others for help because of fatigue
Please Choose

30) Quality of my life was affected by fatigue
Please Choose

RESULTS:

WHAT DOES YOUR SCORE MEAN?

0
Fatigue has no affect on your daily activities.
1-60
Fatigue has a moderate affect on your daily activities and we would suggest you seek medical advice
61-120
Fatigue has a severe affect on your daily activities and we would suggest you seek medical advice

 

SECTION III - Additional Questions about your Fatigue

1) What do you think is the main cause of your fatigue apart from IBD?

2) What do you think are the other causes of your fatigue?

3) Have you found anything that helps with your fatigue?

4) How long have you experienced fatigue?

Months
Years

5) During this time has your fatigue been:

If you would like a copy your of results please select one of the following:

Please email my results to me.

Please note we do not store your results.