Your Stories

Your Stories

IBD affects the quality of life and well-being of 260,000 people in the UK.

We talked to you to find out how fatigue affects you, and how you manage it on a daily basis.

Videos

Managing IBD Fatigue

The Fatigue Rating Scale

We will be adding further video case studies to the site later this year. If you would like to send us your own video clip of you talking about IBD fatigue, or have any stories you would like to share on this website please email fatigueproject@crohnsandcolitis.org.uk

What Patients have told us  fatigue feels like:

  • “physical heaviness … just a general lethargy and can’t-be-bothered-ness. It’s like a kind of physical depression … feeling under the weather‘ (Julie, 47 UC)
  • ‘ just feeling very, very weary, and no inner energy … I’m bone weary is the old way of describing it… An unfamiliar emptiness, a lack of wanting to do things’ (Robert, 82, CD)
  • ‘My body feels two tonnes of weight … All my limbs feel very heavy’ (Vicky, 24, CD)
  • ‘Overwhelming heaviness … you feel like lead … you just feel like you’re twice the weight you are…you just suddenly feel your arms are like lead and your hair’s heavy’ (Catherine, 49, UC)
  • “ very similar to like minor flu symptoms really. … this fuzziness … the tiredness is so heavy, it’s not an ordinary tiredness it’s so heavy and fluffy and strange’ (Sue, 58, CD)
  • ’Fighting your head to try and get it to work … the brain fog’ (Sophie, 37, CD)
  • ‘Head feels very like cotton woolly, very like fuzzy and I feel really, really tired’ (Fiona, 21, CD)
  • ‘It’s just like an aura round you where you don’t want to do anything … and your brain is a bit addled’ (Roger, 64, CD)
  • ‘Too exhausted to think’ (Ruby, 50, CD)
  • ‘The brain fog feeling’ (Harry, 45, CD)
  • ‘Being very woolly in my thinking’ (Gary, 51, CD)
  • ’The cogs of your brain have all suddenly gone’ (Hugh, 39, CD)